Victoria Hodgkinson, PhD

Executive Director, Canadian Neuromuscular Disease Registry
Department of Clinical Neurosciences, Hotchkiss Brain Institute, University of Calgary, Canada

Poster(s):

• (081) Real-World Survival Effectiveness of Edaravone in Amyotrophic Lateral Sclerosis: A Propensity Score Weighted, Registry-based, Canada-wide Cohort Study
  Saturday, August 26, 2023

  8:00 AM – 6:00 PM ADT

• (C04) European Rare Disease Registries: A Collaborative Effort to Assess the Quality and Suitability of Registries to Describe the Natural History of Disease and Treatment Landscape of Spinal Muscular Atrophy
  Sunday, August 27, 2023

  8:00 AM – 1:30 PM ADT